Communicating About Lead: Lessons from Flint

Doodle reading about lead

We’ve all seen the devastating news from Flint, MI. Many of us have already taken action — either personally or professionally. As health communicators, we have an important role to play in educating the public (or sometimes just our friends and family) when a health crisis makes headlines. Especially when it’s a complicated environmental health topic like lead poisoning.

You see, dear readers, lead poisoning prevention is near and dear to our ❤s at We ❤ Health Literacy Headquarters. We see it as a social justice issue, as lead poisoning disproportionally affects already vulnerable populations — like people of color, refugees, and people who can’t afford lead-safe housing.

As we communicate about the health impact of the crisis in Flint — and about the ongoing prevention efforts throughout the country — here are a few tips to keep in mind:

  • Use plain language to explain the causes and dangers. Watch out for jargon like exposure or monitor.
  • Make sure your message is appropriate for your audience. For example, telling the residents of Flint that lead poisoning is 100% preventable certainly isn’t the best approach at the moment. Instead, focus on clear action steps that concerned parents can take — like drinking bottled water and getting kids tested for lead poisoning.
  • Never rely on numbers alone to communicate risk. If you’re following the Flint lead crisis news coverage, chances are you’ve been hearing about parts per billion (how lead is measured in water) and micrograms per deciliter (how lead is measured in a child’s bloodstream). With complex measurements like these, it’s even more important to give context for what certain measurements actually mean for individuals and their families.

It’s also important to remember that lead poisoning doesn’t only come from catastrophic events like Flint. CDC has some great plain language resources on lead poisoning prevention (disclaimer, we may have had something to do with these, back in the day):

The bottom line: Public health disasters like the lead poisoning crisis in Flint can offer valuable reminders about the critical need for effective health communication.

Testing Techniques Part 4: Online Surveys

Illustration of a "Survey Survey" with the question "Is your survey plain language?" and a 10-point scale from "Nu-uh!" to "Ehh..." to "Yes" (selected), with a game show host pointing to it and saying "Survey sa..." with several unimpressed onlookers.

Online surveys can be great tools for learning about your audience, but it’s important to create them carefully to get the information you want — especially if your audience has limited literacy skills.

Whether you’re using existing survey questions or creating new ones, plain language and clear design principles apply (surely this is not surprising, dear readers).

If your survey is full of jargon, you might be testing how well your participants understand the survey itself, rather than getting accurate answers to your questions. (In fact, if your audience has extremely limited literacy skills, a written survey may not be a good way to gather information at all.)

Keep these tips in mind to make sure you’ve applied plain language and clear design principles to every last nook and cranny of your survey:

  • Write clear and simple instructions. If participants can select more than one answer, ask them to “Check all that apply.”
  • If you’re using a scale, make sure it’s consistent and easy to understand. For example, if 1=bad and 10=good in the first question, stick with that format for the following questions, too. Switching up the response order can confuse participants and leave you with bad data.
  • Left-justify questions, charts, images, and the Next/Previous buttons. When you center or right-justify important information, it’s easy for participants to skip over it.
  • Add visual cues to help participants follow along. Number questions, be sure to use plenty of white space, and let folks know how many questions are left.
  • Split questions into multiple pages. Long, scrolling surveys take longer to complete (it’s so easy to lose your place!) and participants are more likely to miss questions. Instead, separate information into meaningful chunks, and arrange the chunks in a logical order.
  • Pilot test your survey. Test your survey with a small number of participants (10% of your total sample is a good rule of thumb) to work out any kinks.

The bottom line: Apply plain language and clear design principles to your surveys to get data you can use.

In Support of the GIF

We’ve warned you, dear readers, about the use of subpar illustrations and photos. Today, we focus on the exciting potential of using (well done) GIFs to support your health messages.

Animated GIF of a Doodle pointing to the steps "Think about your message", "Realize you can use an animated GIF", "Do it" as another Doodle gets increasingly excited and jumps up and down.

GIFs (graphics interchange format files, if you were curious) are a great way to help deliver a complex message — like when you need to text a friend about how excited you really are. They can also come in handy when you’re trying to convey health behaviors that are hard to describe in words.

For example, you can create custom GIFs from illustrated images to easily show a specific movement — like these exercise GIFs.

One advantage of using GIFs is that, unlike video clips, they don’t need to show real people or places. With animated images, you have more control over the message. For example, this resource from the American Academy of Pediatrics helps concerned parents identify and communicate about physical developmental delays. It includes several GIFs comparing movements of a child with typical development to movements of a child with a physical developmental delay.

Animated GIF showing the movements of a young child with typical development who can support their head as they sit up, compared with a young child with a physical developmental delay who cannot.

These animated illustrations let parents focus on the movements that you’re trying to draw their attention to — and not the child’s adorable outfit, the toys scattered across the floor, or other details that aren’t part of the main message.

The bottom line: Consider GIFs when creating health content. And give yourself a high five for your health literacy prowess!

Let’s Talk About Sex (and Gender)

Illustration of a game show "Pick'n'Doors" with 2 doors that say "Sex" and "Gender" on them, and a game show host telling a contestant "One of these doors has the perfect word for your content...the other has a goat!"

A common question we get from clients and readers alike is, “Should I use ‘sex’ or ‘gender’ in my health information?” Never fear, dear readers, we’re here to set the record straight!

Sex is biological. It’s about your chromosomes, your anatomy, and your hormones. In terms of sex, most people are male or female.

Gender is social. It’s how your identity relates to society’s ideas of what it means to be a man or a woman.

While it may be tempting to use these terms interchangeably, it’s not accurate. It’s not always as simple as male = man and female = woman. Some people are intersex, meaning their physical sex characteristics aren’t typically male or female. And for transgender, non-binary, and agender people, their gender doesn’t “match” the sex they were assigned at birth.

For health communicators, it’s important to be clear about what we mean. When you find yourself about to write “sex” or “gender,” take a moment to think about what you’re really trying to say. (And if you’re working on a form or survey, think about whether you need to ask about gender at all.)

For example, if you’re talking about prenatal testing, you’re definitely looking at the baby’s sex. That 20-week bundle of joy has only just started to develop a nose — it has no idea what its gender is.

On the other hand, if you’re talking about which groups face the highest rates of intimate partner violence, that’s gender. It’s about how people are perceived and treated as men or women, not about their physical characteristics.

The bottom line: Resist the temptation to use “sex” and “gender” interchangeably — think through what you mean first.

How To Write for Everyone (Sort Of)

Illustration of a Doodle with a megaphone in front of a giant crowd, holding up a piece of paper and saying "Behold! A document that considers all of us!"

We’ve talked about knowing your audience and tailoring your content, but how do you write relevant content when your target audience is very broad? Say, all Americans ages 18 through 45?

That’s a big group of people with really varied demographics. In these instances, your main objective is to not exclude any of your readers. You do this by focusing on things that are accessible to — and inclusive of — nearly everyone in your target audience.

Use these tried-and-true tips to create content that will work for (almost) everyone you’re trying to reach:

  • Use common, realistic examples. Cross-country skiing is a great way to stay active, but it’s not an option for people in warmer climates or those who can’t afford the equipment. Instead, give low-cost exercise examples that could work in warm and cold weather — like walking or playing catch.
  • Avoid assumptions. Let’s say you’re writing content for pregnant women. Instead of saying “your husband,” “the father,” or even “your partner,” try using more inclusive language, like “partner, family member, or friend.”
  • Test your materials. Ask research participants: Who do you think this material is written for? Would you be able to do these action steps? Then adjust as needed.

As always, keep your message concise and in plain language.

The bottom line: When you’re writing for a broad audience, consider their diverse needs to make sure your content hits the mark.

2016 Health Literacy Resolutions

Illustration of 2 Doodles in New Years hats, with one saying "...and train my dog to skateboard. What are YOUR resolutions for 2016?" and the other responding "all of these" while pointing towards the contents of this blog post.

As the calendar pages of 2015 dwindle, let’s commit to making 2016 bigger, better, and more health literate than ever! We can do it, dear readers.

Still looking for a resolution? Here are a few to ponder (even though you’re probably already doing them because, well, our readers are the best!):

The bottom line: In 2016, recommit to making health literacy a priority in the work you do.

What Star Wars Teaches Us About Health Literacy

Illustration of Star Wars characters Chewbacca, Yoda, Luke Skywalker, Leia, and BB8 looking at a lightsaber, while Darth Vader looks on sadly from across the room.

[Editor’s note: We have a few hardcore Star Wars nerds here at We ❤ Health Literacy headquarters and their enthusiasm in these final days before the release of The Force Awakens has gotten unbearable. In an effort to distract them, we’ve given them this week’s post — sincere apologies to all you non-Star Wars lovers out there.]

The wisdom of Star Wars has been applied to just about everything — from religion to psychology to philosophy. So why not health literacy? Drop your blasters and get some health literacy tips from a galaxy far, far away.

Have a clear main message. Remember the good Star Wars movies? About those kids who fight evil and save the galaxy? That clarity worked. The ones about the trade embargo that is actually just a ruse disguising a power play by the senator from Naboo, who secretly is — well, those didn’t work quite as well.

Test (and retest) your materials. Clearly, the Empire needed to do more prototype testing. How else can we explain the obvious flaws in the construction of the Death Star’s thermal exhaust port and reactor? You know, the ones that got it blown up — twice?

Use plain language. Think about all the famous Star Wars quotes: “May the Force be with you,” “I am your father,” and “Help me, Obi Wan Kenobi — you’re my only hope.” Simple and direct. And sure, technically they’re called All Terrain Armored Transports, but everyone calls them walkers. Always use language that regular people use.

Cut everything that’s not essential. As it turned out, Luke did just fine without that hand.

Keep it simple. Did you see Yoda living in a splendid palace befitting his status as the greatest Jedi in the galaxy, pampered by Rodian and Twi’lek servants? Nope — dude is living solo in a boggy tree trunk. If ever a Muppet embodied the principles of simplicity, it’s him. (Just don’t write like Yoda — know what we mean, you do, hmm?)

The bottom line: May the Force be with you, health literacy fans. And let’s hope Episode VII is one of the good ones.

Communicating About Cancer

Illustration of stick figure doctor saying "...in summary, the negative result of the biopsy of renal tissue demonstrates that the tumor is benign, not malignant..." as another stick figure says "But what does it MEAN, man?!" and a third figure shrugs.

Cancer is a confusing, scary subject — so it’s no surprise that it’s also a tricky one to write about.

As you know, dear readers, communicating about cancer involves a lot of complex terminology. And when people are under a lot of stress (like when they’re worried about cancer), their reading comprehension drops regardless of their usual level of health literacy.

So before you use a complex cancer term, always ask yourself if there’s a simpler, more direct replacement that’s still medically accurate. For example:

“If the cancer is metastatic, you may need different treatment.” Instead of using “metastatic,” can you say, “If the cancer has spread”?

“We will run tests to find out if the tumor is benign or malignant.” Try to avoid words like “benign” and “malignant” — and even the confusing word “tumor” when possible. Instead, you could just say, “We will run tests to find out if you have cancer.”

“You may need a biopsy of the prostate tissue.” Leave out the jargon word “tissue” and say where it’s coming from (in this case, the prostate).

“Biopsy” is trickier. With some audiences, you could simply call it a test. But if you’re talking to people who may need repeated biopsies, teach the term instead. Add a sentence like, “During the biopsy, a doctor will take a small sample of your liver to test it for cancer.”

Keep in mind that you can’t always use these simpler substitutions. Depending on your audience and goals, you may need to use more complex terms. That’s okay, as long as you explain them in plain language.

The bottom line: When you’re writing about cancer, avoid jargon when you can — and explain important terms in plain language when you need to.

Health Lit Live with Dr. Michael Paasche-Orlow

Illustration of stick figure hosting the talk show "Health Lit Live!" with Dr. Michael Paasche-Orlow as a guest.

“Health Lit Live” is our series of interviews with the movers and shakers on the health literacy scene. In this edition, our imaginary illustrated host Doug Doodleman sits down with renowned health literacy expert — or as he describes himself, “notorious health literacy recidivist” — Dr. Michael Paasche-Orlow, Professor at Boston University School of Medicine. Dr. Paasche-Orlow collaborated with the National Library of Medicine (NLM), RTI International, and CommunicateHealth to create the Health Literacy Tool Shed.

Doug: Welcome, readers! Today we have — who is this? Oh yes, Dr. Paasche-Merlot, who’s going to chat with us about this Health Literacy Tool Shed he helped develop in his backyard.

Paasche-Orlow: Thrilled to be here!

Doug Doodleman looking worried, thinking about a shed with a giant spider next to it.

Doug: Listen, I’m going to cut right to the chase. I already have a tool shed in my yard. It’s kind of ramshackle and I’m a little scared to go in it because tools can be so pointy. And, you know, spiders. I ask you this: Why should I go in your tool shed?

Michael Paasche-Orlow with a "no spiders" symbol next to him.

Paasche-Orlow: Doug, I’m going to be blunt here. It’s not that kind of tool shed. It’s a growing, curated online database of over 200 validated health literacy tools and assessments. It’s on the web, but there are no spiders.

Doug: Oh, they’re tools you get on the interwebs, eh? So tell me what these e-dealies do.

Paasche-Orlow: Well, health literacy is often a key variable in research. We want to know things like: How might a person’s health literacy affect her overall health? Or, did a new health campaign have an impact on a population’s health literacy? We need reliable tools to measure health literacy to find that out.

Doug: That makes sense.

Michael Paasche-Orlow holding out his hands.

Paasche-Orlow: There are a lot of health literacy assessments out there — many have been developed in just the last 10 years. Our idea was to create an interactive, one-stop shop where researchers could check out a variety of these tools and choose the one that best meets the needs of their project.

Doug: How would a researcher actually use the Health Literacy Tool Shed?

Paasche-Orlow: You can browse the tools or sort them by different criteria — like the type of health literacy you’re measuring, the specific focus, language, or how long it takes to do the assessment. Once you find what you need, you download it.

Doug excitedly wielding glue and macaroni.

Doug: Cool! So can anybody hang a tool up in the shed? Just so happens I whipped up this pretty sweet tool backstage on construction paper with crayons and glitter and macaroni and —

Michael Paasche-Orlow holding up one finger.

Paasche-Orlow: Afraid not, Doug. We have clear criteria for what gets included. For example, every tool has to have been published in a peer-reviewed journal — we need a clear description of how the tool works and how it was developed.

Doug: Bummer. So how extensive is this collection? Do you have a measure of health literacy related to, say, dentistry and oral health?

Paasche-Orlow: We have several, actually.

Doug: Color me impressed. How about a tool to assess health literacy in Cantonese-speaking patients with diabetes?

Paasche-Orlow: Yep.

Doug: Amazing! What about a tool to assess “transcripts” of fictional health literacy focused talk shows hosted by fabulously telegenic doodles — in Elvish?

Paasche-Orlow: You got me on that one.

Doug Doodleman looking unimpressed.

Doug: Kind of an oversight, don’t you think?

Paasche-Orlow: Sure, Doug. But you can suggest it using the online form on the website. We encourage users to recommend tools they think we should add, so the site is as useful as possible.

Doug: Ooh! I’ll do that right now! Thanks! And readers — take a shortcut through the Internet’s backyard to the Health Literacy Tool Shed! Lots of helpful assessment tools! And no spiders!

Doug Doodleman and Michael Paasche-Orlow smiling and holding a sign that says "The End!"

The bottom line: The Health Literacy Tool Shed is a one-stop shop for quality health literacy assessment tools.

Tweet about it: Check out @CommunicateHlth’s #HealthLit Live interview with @MPOHealthLit to learn all about the Health Literacy Tool Shed: https://bit.ly/3ANR86E